Mohammad Al-Ubaydli

Ashoka Fellow
Fellow Since 2011
Related TopicsHealth & Fitness, Health care


This profile was prepared when Mohammad Al-Ubaydli was elected to the Ashoka Fellowship in 2011.
The New Idea
Patients Know Best provides individual patient’s access to and control over their individual medical records by providing clinicians and healthcare organizations with a platform to securely communicate and collaborate with patients and to deliver coordinated care. It is the world’s first patient-centered medical records system and is still the only one integrated into the U.K.’s National Health Service (NHS) secure network for use by any patient with any clinician in the U.K. or overseas. By increasing the flow of information to the person with the greatest stake in a successful outcome—the patient—Mohammed believes that the unnecessary use of the healthcare system will be reduced and overall care will improve. Mohammed’s goal is to make patients more active participants at the center of their care, rather than simply passive recipients, which will over the long-term increase the quality and reduce the costs of the healthcare system.

Patients Know Best empowers patients by making them the central foci of their healthcare. It enables patients and clinicians to send messages securely, to conduct consultations online and via Skype, to enter and view test results, to keep and view a patient diary and to upload and view important medical files. Patients can grant access to all their clinicians, providing a single patient view instantly, without duplication or re-entry of patient records. In addition to sharing their data with their medical team, patients can opt to allow key relatives and caregivers to have access to their record so that they can be kept updated. They can also choose to share their data with patient charities who are looking to carry out medical research or pharmaceutical companies who are looking to carry out trials. For the patients, Mohammad has focused on providing the right information to improve management of care, as well as information to help patients interpret the data. Moreover, the information is encrypted so that only the patient can access their data and only the patient can decide who else they would like to share that data with. For hospitals and insurers, he is focused on demonstrating significant cost saving by reducing unneeded care and mistakes.

As a long-term patient and a doctor himself, Mohammad saw the potential for Patients Know Best to impact the health system from personal experience. He designed the platform with the intention that it would one day scale to accommodate huge user numbers and therefore made sure that it was compliant with both EU and U.S. data protection legislation so that it could be used worldwide. Currently Patients Know Best is being used by departments in Great Ormond Street Hospital, the U.K.’s largest children’s hospital, Novartis, a pharmaceutical company, to conduct medical research, and UCL Hospital, the U.K.’s leading asthma care centre. Others have tried to centralize patients’ medical records through technological platforms, but Mohammad’s approach is different because he is fundamentally trying to shift more authority and responsibility to patients through the flow of information. His approach is beginning to show an impact on the complicated healthcare system, because it is tailored to the interests of each of the key stakeholders.
The Problem
The Strategy
The Person

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