Dian Wahdini Syarief
This profile was prepared when Dian Wahdini Syarief was elected to the Ashoka Fellowship in 2012.
The New Idea
While others focus on campaign and building exclusive community of people living with Lupus (Odapus) or SLE (Systemic Lupus Erythematosus) –a systemic autoimmune disease, Dian is building the supporting system where Odapus and Low vision (LV) could live longer and healthier. To ensure the health system is available, Dian works with the District Health offices assisting doctors and nurses at the sub-district health clinics aware of SLE and improve their skills in early diagnosis and treatment. She has also partnered with 100 volunteer doctors for Lupus (Dokter Pemerhati Lupus) who then set up Health Center for Lupus in different public ehospitals (Yang men set up Lupus centre adalah para dokter pemerhati Lupus).As medication and laboratory test are costly, Dian engages pharmacies and laboratories to provide discounted price for Odapus. She is also proposing to the Health Ministry, pharmaceutical companies and hospitals to ensure the equal distribution of drugs for Lupus for the poor and in remote areas. In mobilizing public support for Odapus, Dian engages researchers to find immunosuppressant from natural resources. While doing a creative campaign by selling among others music album, audio book and Ring Back Tone on Lupus, Dian is mobilizing people to support her work sustainably. Currently about 500 Odapus joined in her Lupus Community and set up online peer support group to facilitate communication and information exchange from Odapus in remote areas including those who live abroad. In addition to working with her Lupus Community to spread her work and connect to other groups, Dian has also been working with the Health Ministry to develop operation guidance to address SLE including among others planning in Ministry resources deployment, preparing Ministerial Decree for drug pricing and distribution control, Standard Operating Procedure and referral system for hospitals and health clinics’.