A mom of two children with a rare genetic condition, Ashoka Fellow Sharon Terry is on a mission to make sure all families have access to diagnostic tools and can drive their own health. Late last year, Sharon announced a new global initiative that will extend whole genome sequencing and ultimately diagnosis and treatment of rare genetic diseases to communities in the U.S. and around the world. Patients' control over their own data and privacy are core values. Join us Feb. 2 when we talk to Sharon about putting these principles into practice in the new initiative (enabled by a $120M gift).
The conversation will be about 30 minutes. Bring your questions!