Ashoka Fellow
United States
Fellow Since 2009
    This description of Sharon Terry's work was prepared when Sharon Terry was elected to the Ashoka Fellowship in 2009.
    Introduction
    Sharon Terry is improving health outcomes for patients who have genetic diseases by aligning incentives and structures so that they facilitate, rather than obstruct, the continuum of research, drug development, treatment, advocacy, and support.
    The New Idea
    The Problem
    The Strategy
    The Person

    Updates

    We have developed the Platform for Engaging Everyone Responsibly (PEER) to enable participants in health care services and biomedical research to share their health information using granular and dynamic sharing, privacy and access preferences. People control who sees what data, when. See more at https://www.peerplatform.org Featured in The Rise of the Reluctant Innovator, by Ken Banks (2013)

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